The Association

The International Aicardi-Goutières Syndrome Association (IAGSA) was founded in June 2000 as a no-profit organisation whose aim is to coordinate the efforts of parents, doctors and therapists in an effort to raise awareness and spread knowledge of Aicardi-Goutières Syndrome (AGS).
The purpose of the association is to provide updated information, to offer consultation and, through contacts with doctors and health organisations internationally, to promote and support scientific research in areas linked with AGS; the association may also organise conferences, symposia and meetings with and among the families of affected children.

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